Three week health update.
Sorry it’s been a minute.
I really haven’t been feeling well. Which I know I rarely ever feel “good” but it’s been extra bad.
I’ll just go date by date to fill you in and then give a general update.
10-28-2024 I had pelvic floor physical therapy (PFPT) that morning. Nothing really to note other than it usually hurts and I am given more exercises to do at home.
10-30-2024 I had an ultrasound done of my left hand where they found no evidence of synovitis, meaning it’s not likely that I have rheumatoid arthritis which is good. But they did find thickening of the first annular pulley of the middle finger of the left hand and some soft tissue thickening just distal to this, which may represent thickening of the cruciate pulley. I’m not really sure what that means and no one has told me it’s anything bad, so I’m just sort of ignoring that for the moment.
11-01-2024 Met with my PCP because the muscle relaxers with my beta blocker I am currently taking was REALLY BAD! I start to have just random shaking and random anxiety, so I stopped taking the muscle relaxer for now. My PCP recommended a different muscle relaxer but I decided not to take it yet because I’m honestly just super anxious whenever I take new medication, because it usually never sits very well with my body. She also ordered me some tryptase blood tests so that I can test for MCAS.
11-04-2024 I had PFPT this day. Same old same old. I really like the staff there, they are super nice, I just am not sure if it’s making a difference.
11-05-2024 I got a ton of blood work done which was amazing, but I almost passed out at the blood draw place because I wasn’t feeling very well.
11-06-2024 I had PFPT again.
11-07-2024 Met with the allergist to talk about MCAS and the other random allergy things going on. She ordered me some more bloodwork to be done to test for MCAS and also to see if I have randomly developed an allergy to seafood.
11-11-2024 I had PFPT again and really did NOT feel well this day. I was super out of it and felt like I was going to pass out multiple times and left sort of early.
11-12-2024 Went to the ER because I had been feeling really bad and my body wouldn’t stop shaking every time I had to go to the bathroom (before, during, and after). They gave me fluids and tested my bloodwork and gave me some valium I could pick up at the pharmacy to help with the muscle spasms, to which I have not picked up yet because again I am scared to take more medication.
11-13-2024 Got a ton more bloodwork done and had a mini panic attack while in the waiting room, but I got the bloodwork done.
That brings us to today and here are the results from some of this stuff:
- My initial tryptase test (baseline) was 4, which is normal. Now I just need to get my tryptase tested right after I have an allergic reaction.
- My bloodwork does not show that I am allergic to seafood, so I’m not sure what the hell is going on when I’ve been eating seafood recently.
- My bloodwork overall has been normal but my lymphocyte relatives were super low and my neutrophils relative were super high at the hospital. Again not sure entirely what that means, but it’s notable.
I think that’s it for results, but as you can see from all of the shit I have done, I’m exhausted. This is exhausting. I feel like I’m drowning under the pressure of seeing doctors all of the time with little to no results.
Here are my symptoms from these last 3 weeks:
- Ate some salmon on 11-03-2024 and immediately started to get really red and puffy face, had to take some zyrtec which I hate because it makes me feel really out of it.
- Ate something that my body didn’t like on 11-08-2024 and then the next day I was so nauseous and my literal bones and joints where in so much pain, I had a hard time lifting myself up.
- Started getting muscle shakes so badly on 11-10-2024, I’d wake up and all of my muscles were clenched.
- Took a valium suppository on 11-14-2024 and I immediately had to use the bathroom and almost passed out a few times while on the toilet.
People keep telling me oh you’re too young for all of this to be happening to you and I’m like yeah, I fucking know that… what are we going to do about it?!
I am seeing the colorectal surgeon tomorrow so I’m hoping that I can get somewhere with them.
I NEED something to happen. Like I genuinely cannot just wait around and fuck around anymore. This is ridiculous and I feel horrible every single day of my life.
I am still waiting on some of the MCAS tests and have some more follow-ups, but I just feel like for months now I’ve just been waiting and waiting and waiting and I’m like I can’t fucking do this anymore. I’m about to physically blow up like a bomb.
Okay rant over. Thank you for listening.
I am going to continue to hold on to hope and that there is light at the end of the tunnel. That is what is going to push me forward and hopefully (everyone cross your fingers and toes) that I have some good news at the end of this week.
(Picture is from Todos Santos, Baja California, Mexico.)