ABOUT

Up to date medical information…

Doctors I have seen so far:

• Gastroenterologist
• Primary care physician
• Gynecologist
• Dentist
• Ophthalmologist
• Cardiologist
• Otolaryngologist (ENT)
• Naturopathic doctor
• Physical therapist
• Neurologist
• Dietician
• Psychiatrist
• Therapist
• Endocrinologist
• Dermatologist
• Allergist
• Colorectal surgeon
• Physical Therapist
• Rheumatologist
• Pelvic pain specialist

Tests / procedures I’ve had so far:

• Colonoscopy
• Endoscopy
• Halter monitor
• Brain MRI
• Brain CT
• Sinus CT
• Abdominal CT
• Echocardiogram
• Bloodwork (ANA for connective tissue disorders, rheumatoid factor, cyclic citrullinated peptide antibody, complete blood count, …)
• Chest x-ray
• ECG
• Fecal testing
• 72 hour fast
• Sleep apnea test
• Hearing test
• Videonystagmography (VNG)
• Anorectal manometry
• MR Enterography
• MRI with defecography
• Temporal bone CT
• Wrist x-ray
• Hand x-ray
• Mesenteric duplex ultrasound
• Hand ultrasound

Emergency room visits:

• I have now visited the emergency room 15 times and have stayed there twice both for 2 nights and 3 days…

What I have been diagnosed with so far:

• Systemic Inflammatory Response Syndrome (SIRS) > was hospitalized and resolved
• C. difficile > resolved
• Small intestinal bacterial overgrowth (SIBO) > keeps coming back
• Irritable bowel syndrome (IBS) > work in progress
• Hypoglycemia > confusing
• 2 colon polyps (9mm and 3mm) > removed
• Esophageal ulcer > improving
• Dyssynergic defecation > work in progress
• Small anterior rectocele > still have
• Tear in my right puborectalis muscle > still have
• Tarlov cysts > still have
• Levator syndrome > this is a secondary outcome to all of the irritation going on it my colon
• Anal fissures > suspected
• Hemorrhoids > large and one has burst before
• Eczema > using creams to help

Symptoms:

• Ongoing
  • headache / migraine / head pressure
  • fatigue
  • hypoglycemia
  • tremors / shakes / muscle spasms / muscle tightness / weakness
  • dizzy / light-headed
  • shortness of breath
  • hives / dermatographia / facial flushing and swollen face / itchiness / swollen and red hands / eczema / skin bumps 
  • cold hands / feet
  • tachycardia / heart palpitations
  • diarrhea / constipation / abdominal pain / nausea / bloody stool 
  • light sensitivity
  • joint pain / bone pain / muscle pain
  • brain fog (dissociated feeling) / anxiety
  • yellow / orange stool
• Improving
  • double vision
  • visual hallucinations
  • heart palpitations > better because of metoprolol
  • high heart rate (tachycardia) > better because of metoprolol
  • dehydration
  • weight loss (I lost 30 lbs in 6 months)
  • irregular periods
• Weird symptoms
  • get dizzy when I drink too much water or when I drink sparkling water 
  • get dizzy and lightheaded when I eat sugar 
• Symptoms in action
  • dizzy when I eat or drink
  • dizzy and lightheaded and hot when I need to have a bowel movement
  • pre-syncope when having a bowel movement
  • cannot tolerate a lot of medicines because of adverse effects
  • allergic reactions to random foods
  • stomach pain and shakes when I eat and after eating
  • if I’m having spasms and I have a bowel movement or pass gas, they usually improve
  • sometimes when I am having the shakes or am dizzy and I drink juice, I feel better and get really sleepy but not always

Medications:

• Still taking:
  • Metoprolol succinate ER (daily)
  • Tylenol (as needed)
  • Toradol (as needed)
  • IB gard (as needed)
  • Tizanidine (as needed)
  • Zyrtec (as needed)
  • Allegra (as needed)
• No longer taking:
  • Benefiber (for diarrhea and constipation, didn’t work, stopped)
  • Miralax (for constipation, made me dizzy, stopped)
  • Nortriptyline (for diarrhea and constipation, didn’t work and had bad side effects, stopped)
  • Dicyclomine (for diarrhea and constipation, sort of works and made me dizzy, stopped)
  • Wellbutrin (for suspected depression, gave me a lot of energy for a little while then started causing increased heart rate and made symptoms worse, stopped)
  • Zoloft (for anxiety, made me feel like a zombie and I couldn’t even function and also increased anxiety, stopped)
  • Pristiq (for what they thought was anxiety, had really bad side effects like migraines and felt super out of it, stopped)
  • Xanax (as needed, don’t really take)
  • Ativan (as needed, don’t really take)
  • Vancomyacin (for c. difficile, 1 round)
  • Dificid (for c. difficile, 1 round)
  • Metronidazole (for BV, 1 round)
  • Xifixan (for SIBO, 2 rounds)
  • Tizanidine (daily, helped muscle tremors and stiffness but ended up causing increased shakes when not taking and anxiety, stopped taking everyday)
  • Valium suppositories (were very painful and left my butt feeling super sore, stopped)
  • Propranolol (allergic reaction, got super hot and facial flushing and dizzy and swollen, stopped)
  • Metoprolol tartrate (not feel good all day long, felt super out of it, stopped)
  • Cromolyn sodium (TERRIBLE migraines, sore throat, difficulty swallowing but did improve the color of my poop from yellow / orange to a normal brown and improved the consistency of the poop, but stopped because of the really bad side effects)
  • Allegra (4 per day, light-headed, dizziness, stopped)
  • Z pack (for sinus infection)
  • Cyclobenzaprine (helps with the stomach muscle spasms but makes me shake and is kind of an upper, stopped)