PHOTOS
November 2023
My first few times in the emergency room
I was given fluids and they checked my chest because I was having tachycardia
December 2023
The first time I was hospitalized and I was diagnosed with Systematic Inflammatory Response Syndrome (SIRS)
I spend 3 days and 2 nights in the hospital
January 2024
My face started having red inflammation and my skin was very oily
The picture on the right is after going to the eye doctor, only one of my corneas dilated
February 2024
Another emergency room visit on the left
The picture on the right is after the nursing staff tried to stick the IV into my hands before my colonoscopy and endoscopy
February / March 2024
Another emergency room visit on the left after my colonoscopy
The picture on the right is trying to cook but having so much brain fog that I forgot about the stove for over an hour
May 2024
Another emergency room visit after reaching blood glucose levels of around 30
They kept me in the hospital to do a 72 fasting challenge to induce hypoglycemia and then test my blood at that time
September 2024
This is what a majority of my days look like
I am exhausted from the moment I wake up to the moment I go to sleep
But thank goodness for my cat Boo who keeps me company
October 2024
Again this is what my life looks like a lot of the time
I just wish I had enough energy to do more things
November 2024
I try and get outside and sit in the sun as much as I can because sunshine always makes me feel a little bit better
I also sit and write on my whiteboard my symptoms and different diagnoses just so that when I do meet with doctors I am prepared
January 2025
I have bought different medical equipment, including a blood pressure monitor and was able to do a “poor mans tilt table test” to record that my blood pressure stays the same but my heart rate significantly increases from laying to standing
January 2025
Again, I have a hard time cooking because I forget about the food that is cooking
January 2025
This is what my migraine days looked like, I would have my sunglasses on because light hurt my eyes and my head
And in the picture on the right, I could barely move some days and so would bring food and medicine to me for the day
April 2025
I ended up getting an in house sleep study done to see if I have sleep apnea or another condition, which I found out I do not
April 2025
These are my left and right legs after I got out of the shower, I’m not sure what these red patches were and they don’t show up every time I shower
May 2025
The left picture is me with an ice pack on my face
In the picture on the right is me and my handy dandy whiteboard doing a brainstorm session
June 2025
In the left picture my Apple let me know that I have low walking steadiness and a fall could be happening in the next 12 months
In the picture on the right is my Apple watch again letting me know that my heart rate is high when it looks like I’m not moving
August 2025
In the left picture I was being prepped for my ENT surgery
In the picture on the right is after the ENT surgery, my nose was constantly bleeding but it was a succes
September 2025
In the left picture I am just exhausted after spending time with family even though it brought me a lot of joy to participate
February 2026
In the picture on the right is me and Casper both sick laying in my bed together
